Now usually I spend a lot of my time researching topics related to voice acting or improv etc and base my blogs around them. Today I am taking a slightly different approach as I have had to put my research time into something a little differently recently. I have been feeling very much not myself for quite a few months now and after a stint of pleurisy and then pleurisy scarring I was told by the doctors that all is well and I should be fine now. I was not fine however and I had to keep returning to the doctor to get more antibiotics to deal with the constant chest infections and the whole time just going around in circles where I felt great for a day or two and then went back to feeling terrible. After finally meeting with a docttor who recognised my symptoms I got reffered to a Long COVID unit and finally was able to join up a lot of dots and feel the validation of an actual diagnosis. I do indeed have Long Covid and am dealing specifically with Post-Exertional Malaise (PEM). It is not fun to have, but it is great to finally know I am not going insane and that I am actually dealing with an illness, it's just an unseen one. Now I can't hate Long COVID because if it wasn't for COVID striking in the first place I woul not have met my wife via a very specific set of circumstances that happened due to a worldwide pandemic, I just have to learn to live with it. I want to take some time to share what I have learned about it though as it may give you a bit of an insight into what I am going through.
Post-Exertional Malaise (PEM) is a term that might not be widely recognised by the general public, yet it profoundly impacts the lives of those who experience it. Predominantly associated with conditions such as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID, PEM is a debilitating symptom characterised by an exacerbation of fatigue and other symptoms following physical or mental exertion. I will now try and shed some light on PEM, exploring its nuances and offering insights into how it affects individuals.
What is Post-Exertional Malaise?
PEM is the worsening of symptoms after physical, cognitive, or emotional effort. Unlike typical fatigue that can be alleviated with rest, PEM leads to a prolonged state of fatigue and other symptoms that can last for days, weeks, or even longer. The onset of PEM is typically delayed, occurring 24 to 72 hours after the exertion.
Symptoms of PEM
While fatigue is the hallmark symptom, PEM often includes a range of other symptoms such as:
- Cognitive difficulties: Commonly referred to as "brain fog," this can include memory issues, trouble concentrating, and slowed thought processes.
- Muscle and joint pain: Individuals may experience increased pain, stiffness, and tenderness.
- Sleep disturbances: Despite feeling fatigued, many struggle with unrefreshing sleep or insomnia.
- Flu-like symptoms: This can include sore throat, swollen lymph nodes, and headaches.
The severity of these symptoms can vary from person to person, and even in the same individual, it can fluctuate over time.
The Impact on Daily Life
For those living with conditions that include PEM, managing daily activities becomes a balancing act. Tasks that may seem mundane or trivial to others, such as taking a shower, cooking a meal, or even conversing, can trigger a PEM episode. As a result, individuals often need to carefully pace themselves, plan their activities, and avoid overexertion to manage their symptoms.
Managing PEM
While there is currently no cure for PEM, several strategies can help manage it:
1. Pacing: This involves balancing activity with rest to avoid overexertion. Listening to one's body and knowing personal limits are crucial.
2. Energy Conservation: Techniques such as breaking tasks into smaller steps, using assistive devices, and prioritising activities can help.
3. Support Networks: Connecting with others who understand the challenges of living with PEM can provide emotional support and practical advice.
Conclusion
Post-Exertional Malaise is a challenging and often misunderstood symptom that significantly impacts those who experience it. By raising awareness and understanding of PEM, we can foster greater empathy and support for individuals coping with this condition. For those affected, employing effective management strategies can help mitigate the impact on their quality of life.
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